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Collaborative Multi-Condition Caregiving Initiative


Families are essential members of the healthcare team who provide care for their loved ones. We believe that family caregivers of persons with a wide variety of conditions (e.g., dementia, autism, spinal cord injury) have shared experiences and needs, yet research has rarely acknowledged the similarities. With 1U4U funding, we will conduct a series of caregiver focus groups, with the aim of uncovering and articulating similarities and differences across diverse caregiving relationships (e.g., parent, child, spouse) and health conditions. These data will have twofold impact: 1) inform a white paper synthesizing the until-now fragmented and isolated bodies of research, and 2) serve as the first-step in creating a caregiver stakeholder board to facilitate engagement of experienced caregivers who will inform future research conducted by scholars and clinicians at the University of Utah. Community-engaged research practices allow for the most efficient translation of research results into real-world care and clinical practice. This proposal embodies the spirit of OneU by: 1) developing an authentic community-university partnership, 2) enhancing the research activities of scholars and clinicians from Academic Affairs and Health Sciences, and 3) resulting in a better understanding of family caregivers’ experiences and needs. These activities are vital to informing research and changing the way that family members are included in and supported by traditional health care practices.

Collaborators

ANNE KIRBY
College of Health
Occupational/Recreational Ther
Project Owner

MELODY MICKENS
School of Medicine
Division of Physical Med/Rehab

DEBRA SCAMMON
David Eccles School of Business
Marketing

Project Info

Funded Project Amount
$15K

Keywords
caregiving, disability, family, health, well-being

Project Status
Funded 2020
Last Updated: 1/23/20